British Fibroid Trust- fibroids, myomectomy, hysterectomy, uterine artery embolisation, hysteroscopic resection.

Woman2Woman Fibroid Support
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Fibroid Clinic

What Is Fibroid?

How Is It Diagnosed?

How 2 Cope

Treatment Options Summary

Medical Therapy

Hysteroscopic Resection (TCRF)

Myomectomy

Hysterectomy

Endometrial Ablation

Uterine Artery Embolisation

Myolysis & Cryomyolysis

MRI Guided FUS Ablation

Doppler Guided Uterine Artery Occlusion

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Welcome

British Fibroid Trust is set up for women with fibroids. We aim to:

Inform you what fibroids are and all available treatment options with the possible side effects so that you together with your gynaecologist can make informed choice on your suitable & appropriate treatment.
Be a venue/platform where women with fibroids can ease their anxiety by exchanging their experiences and discussing their concerns with each other.
Campaign for more research into the understanding of the cause(s), early detection and diagnosis and better treatments.

British Fibroid Trust is a UK based voluntary not-for-profit organisation which is run by volunteers. We provide balanced information, independent of health care provider's interests.
We Do NOT promote private or commercial practices of gynaecologists or interventional radiologists.

BFT Campaign For More Research Into Fibroid

Petition Signature Counter		Petitioner's Opinions
Target	10000	why is it that men just want to perform a hysterectomy when there are so many alternatives - i have just found another specialist who will do what I WANT - not what he wants [D, Torfaen] I feel very strongly about improving research and treatment of fibroids. I recently had a myomectomy and there were complictions which resulted in me losing 4.5 litres of blood (approx. 75%); this meant that I nearly died and had to have several blood transfusions. Due to the surgeons having to work quikly, my right fallopian tube was damaged during the operation, which will affect my fertility. I have not yet had children and would like to in the near future, but my fertility has been compromised due to lack of funding, research etc. Please move this towards the top of the health agenda. Lavinia [L.K, Bristol] Fibroids need to be top priority for research and male doctors need to be reeducated and to learn, listen and help regarding the pain and suffering that fibroids can cause. [M.D.E.F, London] We, the undersigned, demand that the leaders of our government to put fibroids in the top of agenda for research fundings for better scheme for early detection and non-invasive treatments. [C.H, Abertillery] . [V.B, amlwch] I believe this is an area which needs much more research. [C, Cupar] more research should be done [F.W, Ratho] Enact legislation to require the medical establishment to disclose all options available to women for treating fibroids. Provide sources for information to patients to learn more about each option including discussion boards on the internet wherein fellow-sufferers discuss their experiences in an open and candid forum. [M.C, Bowie, MD USA] i saw a professional and all he wanted to do was a hysterectomy - i saw someone else and has a resectin a week ago and feel fab - i am back in work - some of these men are butchers! [D.B, PONTYPOOL] There is definitely a need for more research and better training for GPs, obgyns and consultant gynaes in this area. it took nearly 13 years from my first symptoms before I finaly found out I had a fibroid - I had started to pass clots and had slight back pain to start and my cycle became shorter and periods heavier over this period of time but was told that this was to be expected!I had UAE in October 2007 and although because of the size of my fibroid it took a while for things to get better it is the best thing I have ever done and I am glad i spent the time to search out a good gynae and interventional radiologist - it took about 18 months and vistst o 5 gynaes and 4 hospitals [S.M, HAVERFORDWEST] I feel strongly about improving research, care and training on fibroid. [O.A, london] I have just cancelled my hysterectomy that was due to take place next week. My gynaecologist wanted to 'whip' out everything including my ovaries even though I have only just turned 43. I have heard of good results in the US where Mifepriston or RU-486 has been used to treat fibroids. I want to take part in trials of this drug here as it sounds amazing. Is any research going on in the UK on the effectiveness of this drug in treating fibroids? [B.S, Borehamwood] Just because it's not cancer doesn't mean it's not worth treating. Surely quality of life needs to move higher up the agenda. [J.E, Bingley] I certainly agree with the view that Fibroids have not received as much attention as it should, considering its prevalence and effects on women. I will be happy to see that more is done towards research and education in the UK. [U.E, Chadwell St Mary] I was diagnosed with fibroids over 10 years ago and had they been treated then I would not now be put in a position where I have to consider an hysterectomy at the age of 43! [R.N, Bradford] Yes indeed more research! on solutions and reduction of risks. [C.A, Worcester] Having recently undergone a myomectomy I know how miserable having a fibroid makes you and affects your day to day life. As much research as possible should bedone in to the cuases of this condition. [C.D, Leeds] Every woman should be fully informed of all options . A young member of our family was fortunate to receive this in London. [M..M, Leeds] I fully support research into this condition and would like to add my name to the campaign to raise more awareness of the condition which causes much suffering to so many women. [P.W, Bosham, Chichester, West Sussex] More guidance needs to be given for women who wish to remain fertile and need treatment for their firbriods [L, Carshalton] I have resisted surgery in the hope that an alternative to the current options will come to light. I'm still waiting [M.L.W, Islington] Living in the North of England the only option here to be completely free of fibroids is to have a total hysterctomy. I don't think anyone truly understands the misery of fibroids,both physically and mentally, unless they have suffered themselves. I have had some relief in the last 12 months with Zoladex. However, there is only 1 GP in our practice who can administer this, and it is almost impossible to get an appointment with him! There should be more research,training,and treatments available to all women in this country. [D.S, Wigton] Also need research into how effective current treatment is. From experience everyone is offered a Mirena regardless of whether this is the best option. Side effects are dismissed as trivial and women are supposed to put up with them as long as there is some decrease in bleeding [H.A, emsworth] Doctors need to be more sympathetic to how it affects womens quality of life, not one person has asked me this question, to which my reply would be i havent got one. more women need to keep going back to gp and complaining. [T.N, Portsmouth] My periods are a nightmare as i have 5 fibroids.Im getting womb ablation in 2 weeks, this being an alternative to a hysterectomy.Hope it works. [S.O, cairneyhill] more reseach also needs to be done on why so many black women have fibriods. [G.H, london] I have just been diagnosed with 3 different types of Fibroids at the age of 40 after years of symptoms which have progressively worsened. I cant accept hysterectomy as the only complete solution when I am yet to have my first child. I dont want to compromise my fertility. More research needs to be made into other options to help sufferers make an educated choice. I live in Dubai where most doctors are British or follow British medical practice. [M.G, Dubai] I am astounded that such the NHS is still offering such invasive surgery as the ONLY option to thousands of women. There are alternative treatments out there that should be readily available to every patient. Either some of the medical profession is ignorant to what is available or there simpy isn't enough funding to make alternative treatments available. However wouldn't it far more cost effective if the NHS only had a patient take up a bed for 2 days( with UAE) as a opposed to 2 weeks ( myomectomy)? It doesn't make sense. [C.L, London] Having had fibroids for at least the past 10 years at the age of 54 they are still growing. I am battling with the medical opinions and this afternoon have an appointment when I will be insisting on a referal to at least talk to a radioligist who performs embolization to then be able to evaluate for myself another option available, apart from hysterectomy which I have been resisting for the past year. Waiting for referals seems such a waste of time. I am now on my third gynaecolgist as they are so narrow minded. [A.J, Brighton] I have recently recovered from a myomectomy, after years off misery and ill health, which was misdiagnosed as "its your age" (hb of 6 by final diagnose of fibroids).I then had the misfortune of being referred to a consultant who only overs hysterectomies!!! Not accepting this i requested a second opinion and finally found a consultant who was willing to give me a myomectomy to retain by uterus!!! Am now recovering but feel more support and research is needed in this area - I fought for my treatment but how many women actually question the their treatment. Many times I did think how my treatment might have differed if I was paying for my treatment! Fibroids effect millions of women, resulting in time off work, depression and fatigue - most of these women carry on because they are working women, mothers, keeping the family home going and do not have time to moan -they just cope!!! I also ponder on how different it would all be - if men had uterine fibroids!! Sorry to be cynical but 3 years of fighting for my treatment on the nhs (as a very high taxpayer) has taken its toll. My advice would be to "step away from the table and get a second opinion". [L.W, leicester] Treatment options need to be made available to the patients throughout their treatment - we would not be looking at these websites if we felt we were being given all our options with their side effects discussed honestly throughout. [G.G, Sale] i first had a ovarian cyst in 2005 op and still not pregnant and low and behold i now have Fibroids but i still trying before it's too late. [K.(.J, Ashton-under-Lyne] As a long term sufferer of fibroid, I fully support that more effort be put in the research for the fibroid and a permanent cure found. [M..O, Gillingham - Kent] My large fibroids are making my life hell and after causing me such intense pain that caused contractions and a late miscarriage, I want to know when I will ever feel normal again. Any research that can support prevention or non-surgical cure I fully support. [G.A, London] Having been diagnosed with fibroids since 2006, I am still trying to decide on my options and believe better guidance and more research should be done [N.K, Edinburgh] i am in the process of having a myomectiomy open surgery. i am 27 yrs old and previusly had no idea about this condition and all the research i have done and what the doctors told me is that this is an older persons illness. i think youger people need to have ultrasound testing so that they dont have to have such an invasive surgery especially before having children as it can potentially effect you.there is also the possibility of having to have hysterectomy which is very upsetting for a young woman. i found it stressful as i have no children. [M.H, leeds] It is about time the NHS looked into more non-invasive treatments for fibroids.1. It is cost effective, cheaper than hysterectomy. 2. Reduces the misery suffered by thousands of women.My Gp in Kent was fantastic the same cannot be said for my experiences in London when I was a Nurse. [T.J.W, DEAL] Please consider that women need access to early detection and non-invasive treatments when it comes to fibroids. I have been lucky that I have been referred within a month, however many aren't. [A.A, Accrington] I believe that gyneacologists must be more forthcoming with their patients regarding all the treatment options for fibroids.Too often surgery is sold as the only option.This needs to change. [S.H, London] I don't suffer with fibroids, but a good friend of mine does. It's another one of those conditions that we know very little about unless we're suffering from it. More awareness would be good. [P.K, Mount Vernon, Glasgow] Please do something to educate and improve the attiude of the male AND FEMALE surgeons and Drs. advising and treating women today. Barbaric and primitive hysterectomy should be AVOIDED at all costs not the first option presented, it's not even cost effective. Get some research going into the cause, prevention and safe cure of one the most debilitating of illnesses that should no longer be ignored. [E.S, London] I would like to support this petition as the mother of a sufferer (about whom the entire family has been anxious for too long).There is an obvious and urgent need for more energetic research and action. [H.S, Urbino] My doctor suspected Fibroids, 2 months ago, after my visit about painful period. She send me for ultra sound and virginal screening yesterday. From chatting with the nurses, I am sure I've got Fibriods. I don't know the type yet because I am yet to see my doctor, but I am frighten and confuse. I started researching, and found this website. Any help would be appreciated. [R.A, Adel, Leeds] Detection and management of fibroids appears to be hit and miss! More research has to be funded to avoid misdiagnosis and to prevent prolonging the misery for sufferers. [S.C, Oakham] I am due to have a Hysterectomy next week due to fibroids I am in that much discomfort that I can't wait. I hoped to keep my womb but this was the only option offered and I can no longer put up with feeling this bad. [K.P, Dudley] IT'S ABOUT TIME WE HAD A PETITION,PLEASE SHOULD ANYBODY ELSE READ THIS, PLEASE GIVE IT YOUR SUPPORT. [P.M, kingsbury] I have recently been diagnosed with fibroids at a private clinic. I am shocked at the lack of advice and information i have been given. I'm having to study and research myself. This subject needs to be taken more seriously and the medical approach by some doctors really needs to be re-addressed. [F.L, Birstall, Leicester] I was only diagnosed with fibroids in February but since I've noticed that's there's so little known about this (I didn't even know they exist, let alone that they affect so many women) I want to see more research done and more education for young people. [P.M, Wimbledon, London] I was disappointed that nothing could be done about my fibroid symptoms and pain in the UK. I had private Uterine Fibroid Embolisation treatment in Australia and have not suffered the same extreme pain as a result. The treatment has also allowed me to carry my son full term and have a normal pregnancy. I do not think I would have been able to have a child had I not had the procedure. More research needs to be carried out so that more women like myself are able to reduce or stop the symptoms of fibroids, as well as have the opportunity to have a normal healthy pregancy. [C.L, London] I think it is important for the government to fund research into this condition. I have suffered with this and underwent an operation in 2004. The condition has returned and I am facing further surgery again. [G.N, London] Please put more money into research this problem affects many women and leads to many lost working days and possible job loss because of problems associated with fibroids please help. [J.C, London] As a sufferer of fibriods it would benefit all women and also help employers who have employees who suffer from this condition. A lack of understanding and exposure of the condition means that colleagues, managers do not appreciate what you go through and the affect it has on your lifestyle. [C.H, greenford] I was diagnosed with Fibroids 5 years ago,have had a myomectomy and am appalled at how little advice and support that has been offered to me. My next option is a hysterectomy!I'm determined to do my own research as I'm only 34.We need more research and less ignorance! [L.H, Arbroath] I under went UAE treatment 2 days ago. We need more research into treatment options. [M, Whitstable] More education in Europe on fibroids and training for gynos to look at alternative solutions to hysterectomy. [J.H, London] I Have 2 small Fibroids but i dont know much about them or the long term effects of them, This should be a concern to the goverment as a lot of women in England suffer withthis problem, [J.T, middlewich] i am 28 years old and never heard of fibroids, i now have a very large one blocking my cervix and may have to have a hysterectomy, further education and research is needed as i had my symptoms put down to just having a heavy period!!!! [S.B, Barnoldswick] Research needs to be done. It makes my life unbearable and resulted in an extremeley difficult pregnancy [C.R, Northampton] There needs to be a routine check on all ethnic women, because some people do not know they have it. [T, london] A better understanding of fibroids is required, including their causes and effective treatments. After almost two years of period misery (up to one week of pain severe enough to interfere with normal day to day life and up to two weeks of heavy bleeding), I was diagnosed with fibroids. The (female) docctor I am now working with is excellent and has given me several options on treatment. However, the only reason I was assigned to her was because I stood my ground and refused to see the male doctor I had originally been assigned. Suffice it to say that he had no empathy for my situation; treated me as though I did not have a brain (dismissing my questions about the procedure he wanted to do - no choice offered and no full explanation of the process offered). The only way I can described his examination was that it was not dissimilar to the way the vet used to examine cows on my father's farm. There is clearly a need for more female doctors in this area and/or for more empathtic male doctors as this is a highly sensitive issue: you are already worried and feeling vulnerable; the last thing you need is for somebody to dismiss your concerns about future fertility as trivial. If you have similar issues, I'd recommend standing your ground until you get the doctor and choices you deserve as a customer of the NHS. [J.L, Farnborough] just been told that have fibroids more test to undergo very scared at the moment [A.B, liverpool] My mother is suffering from fibroids but she is so scared to speak with doctors and do something about it. I want to find an alternative method of reducing the fibroids and would like more campaigns to be done for women to have fibroids investigated at the earliest opportunity [R.H, London] Yes - more research needed. [M.G, Grantham] i found the only way to access information about fibroids is from the internet itself.i would also like to know what other treatments there are for women with fibroids. [J.H, Streatham, London,] We need more research as there is only western women who are able to obtain the information on the subject. If research was widend and more money put into it this may help some of the women in the rest of the world. I am sure ohters feel that there is nothing that can be done but with research they may just be able to stop the Fibroids in the first place, and stop sufferes world wide. [J.V, Crumpsall] My fibroid was dismissed by various bodies for 2-3 years and through my persistence was removed last week- wth near tragic results. It had gotten so big it was a major op and then I had internal bleding and and had tobe re-operated on. [M.S.K, Bury] I have been told by telephone that I require a hysterectomy for a 'possible' fibroid! How arrogant can members of the medical profession be to break serious news in such a manner? My so-called consultant has not even explored all other areas for possible diagnosis or alternative treatment with me. I am getting a second opinion. I am angry and I advise other women to get angry and demand quality treatment to suit you and refuse to undertake any treatment until you are absolutely certain is is right for you. The medical profession must stop experimenting with women's bodies now! [N.S, Bristol] I was told I have 4 this morning, after having pressure on my bladder for several months, and heavy periods and pain for most of my adult life. (which I actualy thought was normal till reading this site)Plus the accompanying anemia. I will find out my options in a week, its been good to read there are other options than hysterectomy, though I have children it seems a bit severe [R.Y, Sheerness] WOMEN ARE NOT BEING TOLD ALL THEIR OPTIONS WHEN BEING DIAGNOSED WITH FIBROIDS. THEY ARE BEING TOLD THAT HYSTERECTOMY IS THE ANSWER !!! ITS THE ONE SIZE FITS ALL OPERATION. IN REALITY ITS JUST SWAPPING ONE PROBLEM FOR ANOTHER. WOMEN SHOULD BE TOLD ALL THE FACTS SO THAT THEY CAN MAKE AN INFORMED CHOICE ABOUT THEIR BODIES. [S.B, henbury Bristol] Hysterectomy is major surgery in every sense and surely should be considered only after all other options have been explored.It's sad to know that years after our mothers suffered unnecessarily the situation doesn't seem to have changed. [J.C, Parkstone, Poole] do believe not enough info or research and advice availbale [J.T, ruislip] Please do this so that my old pal Lynda can get her life back again (and stop being so grumpy). [V.G, Northolt] There is a real lack of support, sympathy and information from doctors and the the government for women with fibroids. We need more research to be carried out on this condition, so that women have more options and the condition can be treated properly. So far there only seems to be temporary fixes for women who still want and can have children. This issue needs to be addressed. [A.E, London] more research is needed [N, london] More research is necessary and a greater priority should be given to research and development to find the causes and treatment for fibroid disorder, which affect so many women. [D.O, New York, NY] I find it shocking how common this problem is, yet how little information or research has been invested into it. I am currently trying to get second opinions, whilst in pain, there is so much ambiguity and it really is time to do more [U.N, beckenham] I think everything should be done to try and reduce the impact of fibroids [O.O, London] we need to look further into what causes them as it all seems to be a bit vague to me. [W.A, newport] no choice given for non-invasive treatment. [S, hayes middlesex] There are alot of women dying in silence as a result of Fibroid, especially in Africa.I have witessed one and saw the misery they pass through. [G.O, Northampton] after being diagnosed with fibroid, i tried to find infomation about this but found it really hard to find. information should be readily acceptable [J.H, Sompting, Lancing] I am in support for there to be more research carried out on Fibroid. I do not mind being part of it if necessaruy because i love research and i have carried some research, including qualitative research in the past on other areas of health.Thank you [N, wolverhampton] I had a large fibroid from the age of 22 and they only discovered it 4 years later, even though I had a laparoscopy! It would be very benefitial for suffers to have more research done [M.M, Lockerbie] After suffering years of heavy and painful periods which have recently got worse, I went to my doctors. Only after seeing a female doctor did I actually get sent for a scan. Scan showed I have a fibroid, thus why I am still in pain several weeks after the last horrendous period (which seems to have been made worse by the contraceptive pill). However, due to dr\'s low level of understanding of this condition I was told should not be giving me all this pain as it is \'only small\'. Sorry, but small or no, there is still something in my womb that shouldn\'t be there. I have been given no treatment or any further details and was dismissed as just being rundown!!More research is definately needed. [C.B, Yate] I'm livid that an incompetent arrogant, ignorant and utterly insensitive NHS consultant took it upon himself to terrify my already deeply distressed daughter. Yes, more research is needed, but also more educating of these so called professionals. [L.L, Sturminster Newton] Totally depressing problem [J.R, Ely] Just discovered I have fibroids and am now preparing for a battle on the basis of what I am reading. [R.S, Batley] it needs to be addressed [J.S, west malling] A lot more research needs to be done into this condition which is so debilitating for so many women. Many women also find it embarrassing to talk about this but I think it is better to have open and honest conversations about the condition because I am sometimes unable to work due to the pain and menorrahagia or can arrange flexible working from home while dosed up on painkillers. Although the majority of fibroids are benign, the problems that they cause warrant a lot more work being done on determining the causes as well as improving the currently available non surgical and surgical treatments. [K.T, Swindon] Not enough is done to find a less evasive action to fibroids. In this day and age its ridiculour. I think if this was something men had to go through a better resolve would have been found by now. [D.F, ABERDEEN] Question everything and do your own research into your fibroid condition and the natural alternatives. Health professionals are only people and sometimes like all of us they can get it wrong. I under went unnecessary surgery due to a misdiagnosis from an ultra scan. Everything I went through could have been avoided if I had been sent for a MRI scan. The total disregard for women’s \"bits\", has to change please. [C.B, llandeilo] hi l had my operation 12 years ago but l had myomectomy its makes me very unhappy but its comes back again its really upset me nobody don`t understand how l feel. we are trying for family but the doctors say no and no help me at all. l try to change my diets and everything.can you help me please thank you. [S.L, dallington northampton] awaiting hysterectomy on 27 Sept feeling o.k. re op. but at 65 would like to know why fibroid hasnt shrunk.Only Knew in July that I had this condition Because of a slight bleed. Generally in very good health.Yes, Im over weight but very active! [L.T, Sleaford ,Lincs] I must say I am very disappointed with the medical specialist in the UK. My first diognises of fibriods, there was only one growth but now it has multiplied to five different sizes but yet I've been told that there is nothing that can be done to help me. [B.I, Gillingham] i am from africa and i know that fibroid affect most women in my country. i think it is important to fund research in order to find the cause of this condition. i am a student nurse and i am very intersted in this subject and i have been reading a lot about fibroid and i am giving you all my support and i think this is brilliant idea. [F.D, london] research for women who are suffering fibroid are necessary. [S.K, Birmingham] It is one of the most common complaints in women so why is this not a better supported problem? [A.F, Helmsdale] I would like to see more research into fibroids. [P.B, Norfolk] I'm 22 and have been suffering from constant bleeding for over 3 years - in these 3 years i've also had 2 misscarriages with no apparent reason behind them. I have only just been diagnosed with fibroids literaly today and am furious that my docotrs couldnt have diagnosed this since! Me & my partner have been suffering together for these past few years with no help whatsoever - even when I complained to the doctor of bleeding/pain etc. More HAS to be done in the terms of research and sympathy as I don't want any woman to have to go through this, GP's just don't understand, let alone listen! [D.C, London] Early detection as vital as late detection can cause months of suffering and involve much more use of NHS resources and sickness benefits and mean people are unable to work. Those over over the age of 35 should be prioritised for screening. Treatment should be as non- invasive as possible. I have known people to be spoken to about hysterectomies when other treatments were still possible. This is completely unacceptable. [A.K, London] This would help many [K.F, Croydon] I have just recently had a fibroid removed and believe there should be much more information made available. I also had to suffer terrible periods for over a year before my GP would refer me. [C.M, Dartford] More research is definitely necessary regarding fibroids as is the availabilty of general information regarding the condition. Having had an abdominal myomectomy 8 weeks ago performed by a fertility surgeon, I was very fortunate (hysterectomy was never mentioned). However, I have never been given any decent information on the surgery, and found that if it wasn't for the fibroid trust website I wouldn't have known what to expect. If you have a hysterectomy, there is a whole lot more info out there. So let's get more info and research into this the sooner the better. [D.B, Eaton Tarporley] I have regrown fibroids. I feel money/Budgets come first before patients in the eyes of the doctors i have seen. [E.C, London] I had a Mirena coil fitted nearly two years ago it looks like it has failed. If i had been told about the side effect i most likely would not have had it fitted. [F.T, MILLPORT ISLE OF CUMBRAE] I have recently been through a lot of trauma due to having a large uterine fibroid. In brief: loss of baby, nearly dying myself due to blood loss, 12 blood transfusions, a big operation and four months bed rest and the possibility of not being able to have children. If more research is required to prevent other women and their partners, families and friends from experiencing such trauma then please do provide funding into this area. [J.B, Sheffield] need recherches about this problem [N, algeria] There definitely needs to be more research undertaken regarding fibroids and alternative methods and medication. Like a lot of women, I too had a male surgeon who was only interested in removing my hysterectomy and that was after my first visit to his surgery! Because of that I vowed that I would keep my uterus as long as I possibly can despite the heavy bleeding and longer periods. Yes we must petition for more research to be carried out as to why fibroids exist and how they could be eradicated at an earlier stage. [D.F, London] more research and support - more access to specialists - less being automatically labelled wilth IBS [S.G, Eastleigh] jbg [F.A, London] I am at the mercy of my own biology and feel really quite desolate sometimes. Treatment has not come far enough, because research is underfunded and this is treated as an unmentionable taboo [A, High Wycombe] When I use my search engine to look for blogs to read yours has come up several times on different categories. That just made me want to read it more, I can see why. It is excellent. Keep up the awesome work and I will continue reading. Jose - [N.E, ] This is such an important issue- there is very little knowledge about the causes of fibroids and because these are not cancerous growths, I believe they are not always given the priority for research. The impact on womens lives of fibroids is huge- and they can affect young women as well as old. [H.S, Sheffield] My girlfriend and I have suffered much trauma due to her fibroid and its removal. More funding, awareness and research is certainly needed. [B, Sheffield] I simply didn\'t realise how many women are affected by this condition. Despite knowing about this condition for so long, so little research and funding has been put towards it that I would love to hear this petition makes a difference. Thanks and love to all who are affected by fibriods. x [S.I, Sheffield] Please help women to get rid of fibroids, especially those who want to conceive and want their family life. Please [S, Plymouth] I was diagnosed with fibroids when pregnant with my second child in 1988,I have since had 5 other children so fertility not affected.I try not to complain despite severe symptoms as GP will push for the obvious solution,which at 43 I have no intention of loosing my womb! [A.H, BRISTOL] More research needs to be done [D.F, Sheffield] I have been very impressed with the Uterine Fibroid Embolisation treatment I recently received. More GPs need to be made aware of this so that they can inform patients that hysterectomy and myomectomy are not the sole options. I support this petition to lobby for increased research into this common condition. [A.P, Bristol] I recently underwent a hysterectomy and whilst care was good and I am recovering well it seems to me that there should be a better answer than to have this invasive operation. thousands of women go through this every year and it is time funding was stepped up to investigate new options for us. [H.K, romford] Research into why fibroids occur to avoid the huge cost of surgeries [K.M, Bishops Stortford] I am pleased to be supporting this campaign. Having had fibroids for over seven years and until recently being told "they will shrink when you hit the menopause" i am now investigating my options. My consultant radiologist recommended this site. [C.S, Minster on Sea] i would like my fibriods removed as i have a lot of problems with them, also i would like another child with my partner and feel that the doctor might think i am to old at 48 in a month time is to old. i feel lost and dont know how to approach my doctor as she might think i am to old. it would help. [C.F, Tottenham, London] I have recently been diagnosed with fibroids and for something that is so common in women, I also do not feel that there is not enough coverage and information on fibroids. Especially as they can cause miscarriage and premature birth etc. All women should be made aware of fibroids. [A.S, Farnham] I was diagnosed with a large fibroid January 2010, not impressed with the information supplied. You have to find information out yourself. Unfortunately I am still waiting for my fibroid to be removed but in the meantime suffering from all the symptoms that go with it, very heavy periods and incontinence, at the age of 34 its very distressing [S.E, Chichester] Isn't part of the reason that there is little interest in this subject, the dearth of female gynaecologists at consultant level. [S.W, London] I was diagnosed with 3 Fibroids 2 years ago after I was hospitalised for suspected Apendicitis. I then developed a lump the other side my body,they found three more larger fibroids on stalks on outside of womb, one was 10cm by 6cm. Also Polyps found inside Uterus. Had digestive problems for years along with very heavy periods and pain. I had been to the GP for years and was always given pill to help, never referred to see Gynaecologist from GP. We need far more research done into Fibroids and how we can treat them without a Hysterctomy being perfomed. [A.S, Johnstown, Carmarthen] More research and awareness needs to be done for Fibroids. [K.R, Northolt] 2011 and we still do not have a clear idea of causes of fibroids how are we going to prevent and effectively treat our daughters? End unnecessary suffering for women, more funding and incentive to research now!! [C.B, London] I support this campaign. The well be of our women should be a priority for government. Help women and you are halfway helping the whole society. [A, Epsom] Doctors do not take you seriously until you need a major life changing operation. Suffered for 7 years being treated by male doctors who did not take my pain seriously. Saw a female doctor who at last even took a feel of my abdomen and refered straight away but have had to have an open myomectomy with salpingoophorectomy. Now forced to have a surgically induced menopause. Not happy at all. Fibroids had grown to the size of a 24 week foetus [A.J, Lewisham, London] Why is it that in the USA Resectoscopic Myomectomy is accepted practice, while it is not generally accepted here? A woman who consents to a hysterectomy cannot guarantee she will wake up with her ovaries still in place. [S.S, Lyme Regis] Need more research on fibroids and miscarriages [J.R, London] Too many consultants and GP's suggest a total hysterectomy as the only answer. [W.W, Bishops Stortford] I\'ve been told that my unique option to a large fibroid is hysterectomy, no alternative. I feel confused and scared about not having others options available. We need to be completely involved in whole process it\'s too risky to leave those decisions to doctors, it\'s our bodies we\'re dealing with. More research in this field it\'s needed. [A.A, London] There has to be better treatment that hormones or hysterectomy. [S.B, High Wycombe] Reading the stories about the suffering caused by fibroids is bittersweet. bitter because of the lack of information despite the amount of people affected by this parasite but also the lack of care and commitment required to help eleviate and cure this ailment.I happened to come acoss this site by accident dureing the numerous attempts to reserch the topic.I was touched and relieved to find women who could identify with the ordeal i am experiancing. It is good to know that so many women are realising that they can and should seek other opions,and that it is their right to have a voice in the methods used to cure them.It is very sad to see that in this day and age we are still in the dark about this ailment and even sadder that their is not enough effort, awareness and fundding needed which is vitial for its cure. [R.O, london] fibroids have awful effects on daily life much more research must be done to find the cause.Help must be found for the next generation of women [L.G, harrogate] No one seems to have a clue about the causes of this very common problem, a solution needs to be found. [M.B, Brighton] more research is needed. i also have fibroids , i have been to my gynaecologist and he only gave me two options. hormone injections for 6mnths or hysterectomy. i went for the jabs but they only shrunk my fibroids by half, the biggest being 5cms. therefore i have to go back and see what else can be done. i am 39 yrs old. [J.B, STRANRAER] I've just descoverd I've got fibroids, by mistake (i was scanned for other reasons) and I'm quite horrifided that because I'm over 40 most Doctors (male and female) seem to think it's a simple answer to whip your womb out. of course it means that they dont have to put much effort and time in to look for what might be best for thier patients, typical of today's money grabbing attitude. [D.E, Denbigh] why do all doctors think that removing a womans womb is the answer to everything?? it's an archaic attitude,Doctors need to be re-educated in this matter. [T.E, Denbigh] I support this peition as I was forced in to an unwanted hysterectomy at the age of 43, whilst a single parent of a 3yr old who still needed lifting. The impact of this was devastating for myself and my child. I was given a re-section which failed, making my symptoms much much worse, which then left me requiring a hystrectomy. At no time was I told of alternative treatments such as myomectomy, tailored ablation, or uterine artery embolisation. The NHS HAS TO STOP PRESSURING WOMEN IN TO HYSTERECTOMY as a treatment for fibroids. [A.C, Bournemouth] As I have been suffering with very large fibroids for over 30 years I fully support this campaign to raise awareness and campaign for further fibroid research in this area. [A.J, Enfield] Gynaecologists should be given definitive guidelines/or legislation should be made, to ensure that treatment options are discussed at time of diagnosis. All NHS Trusts should ensure they have the qualified personnel to deliver all treatment options locally, especially embolisation. [V.D, Darlington] For ladies who have not had children, there needs to be more options than a hysterectomy. I have this condition as well as Stage 4 Endometriosis - it is debilatating. [J.G, Glasgow] I think it is important to get enough researh into fibroids that help us understand and treat this condition better for the benefit of all. [M.A.M, Llantrisant] I have suffered from fibriods twice and the effects of heavy periods & the pain they cause is frustrating, emabarrassing & debilitating. As a professional woman living with the anxiety of this condition each month, getting effective treatments can transform your life and make it normal again. [C.H, Surbiton] I have just been diagnosed with fibroids so any improvement in R&D for this miserable problem would be fantastic. [L.C, WATFORD] I am shocked by the lack of adequate research into cause of fibroids, treatments available and the number of hyterectomies performed due to fibroids. [C.L, Bath] whilst reading your stories, I realise that I have been very lucky with the doctors and treatment I have so far received, good luck to the ladies who are still undergoing treatment. [W.R, Thorpe Bay] I have suffered with fibroids since 1997. I had a very difficult pregnancy in 2002/2003 when one fibroid reached 16cm in diameter. It then went into red degeneration. Thankfully my daughter was born in perfect health at 41wks. But the pregnancy was a very anxious one. [N.S, Ashford, Middlesex] In 2004 I was offered a hysterectomy to remove my fibroids but was not ready to accept I may never have children, so am hopeful that there are alternatives soon that might help me. I see their are a number of us in a similar mind set. Hang in there sisters xxxx [Y, Warrington] It is very concerning to me, having been newly diagnosed today, that there is such a sense of inadequate funding for research, and a poor sense of the treatments and the access to them for women with this condition. [J.W, Chorlton] i have several fibroids the size of oranges which have recently been found. I am told that i need not take any further action.(unless i want a hysterectomy) However i have many symptoms described, such as bloating, frequently wanting the loo, heavy periods. The doctors seem to have brushed me aside without any real alternatives. It seems that these things dont exist similar to the case of when doctors didnt seem to believe period pain, or pmt existed so i welcome this chance to sign this petition. [J.B, cradley heath] Please increase funding for better research. [P.D, Colnbrook] I was diagnosed with fibroids 3 weeks ago. I had an ultrasound scan due to having a coil fitted in December 2010 and subsequently bleeding continuously for 5 months. The bleeding and other symptoms are very slowly improving, but at times feel that the nurse who I have been seeing, who is female by the way, isn\'t really listening to me with my concerns. Quality of life needs to be maintained and more research carried out. [M.P, Slough] . [A.F, Reading] I have had severe pain in my right side of my back for 6 months now & my consultants assumed it was kidney pain. After ruling all that out, they said it could be my ovaries / uterus. After having a scan today it shows some fibroids. So I don't know what happens next. [J.H, Lichfield] Just had a scan told I have fibroids so in the process of researching the condition. [A.P, Newborough] with so many women sufferign with such a common issue funding and proper treatment and care shoudl be available for all women sufferign from this condiion of fibroids. I have n't been able to work for years as a result. [H.S.P, Leicester] I really can't believe that women have to suffer so much and that there are not very many options that don't involve pumping yourself with hormones. Please do something to help us. [L.H, Norwich] I'm staggered at the cavalier attitude that some gynaecologists adopt when approached for help. It appears to me that even the 'experts' aren't as knowledgable as they would have us think, so perhaps if the UK followed the USA's example with government funding, more credence would be given to this debilitating condition. [K, Croydon] hysterectomy should be last choice not first! [M.W, CROYDON] I support this campaign [S.B, Essex] my opinion is to help to find a way which they can check on every single woman starting form teenagers. [T.V.Y, romford, essex] Women should be given an internal exam when having cervical test. I went to my 3 year test without fail and never knew I had fibroids until I went to the UAE and was told during a routine exam. More women need to know sooner.....more funding for NHS to do internal exams as routine! [H.O, London] It's a disgrace that women's health is so overlooked. MORE RESEARCH is desperately needed to help more women. [R.B, Brighton] I would love more research into fibroids; I am having a myomectomy next week and think that the more that is known about fibroids the better. [K.P, Rothersthorpe] Living with fibroids is not living, its surviving as best you can. There is so little information about non-invasive treatments that often GPs will only consider surgery. We deserve better. There should be more awareness in fibroid research so we can make informed decisions about our treatment. [J.C, New Cross London] I was diagnosed with a 5cm fibroid ten years ago and told there was no need to do anything. I am 34 and currently bedridden with a 11cm fibroid that needs to be removed by myomectomy. I am in abject pain, the fibroid is petruding and I cannot work. I feel the 'watch and wait'method is absurd, do we wait until things are this bad? I can't help wondering if they would watch and wait for a benign tumour to get to this size in a man's body. [G.C, London] Just had very painful hysterectomy due to fibroids. Told one was the size of a 22 week old baby. [K.M, horsham] Please help as I have suffered for the last few years and I am still suffering. [M.D, Glazebury] More research needed into the root causes of fibroids, so prevention can be better [S.H, London] I wish there was an organisation composed of all experts called Women First where treating us with respect and creating proper options/researching every angle rather than brutal operations that often create more problems. I am 59 with ovarian cysts and fibroids.The last recommendation was to have ovaries out and take HRT which obviously feeds the fibroids. This was at the Portland Hospital for Women. [L.J, London] Fibroids affect so many women and is a recurring illness. Providing funding for research into the cause of fibroids will help to detect the exact cause and apporpriate treatment which will bring much needed relief and better health for affected women. It will also be cost effective and save the NHS millions, and leave women better able to contribute more effectively to the economy [E.D, London] Very frustrating. Its not talked about. The treatment options are limited. Non invasive options and \"alternative\" options are ignored. Health insurance providers don\'t understand it, and the impact it has on women\'s daily lives and their ability to function is ignored at large. It can be incredibly debilitating and take over your life - it has mine. I\'ve not been able to work, I doubt whether I can claim on my insurance (I need help here), I\'m in lots of debt - but I refuse to be carved open. I\'m addressing the root causes, which I have spent years getting to grips with, as there is no clear official information on this or on alternative courses of action - I\'ve had to go through a painful journey to find this out myself. Fibroids may not be life threatening, they may not be cancer, but that does not mean the impact they have is not profound or turn your world completely upside down. It effects everything: work, life, money, relationships, just the ability to have a normal life. I could go on and on... [S.B, Sheffield] I would like to give my support as I have suffered for many years now.We need more research please. [D.L, High Halstow Rochester Kent] T.M. London [T.M, London] I had a myomectomy in 2009 and now I'm faced with the same issue in 2011! I really need more credible options than hysterectomy. There needs to be more research into the causes especially as it's so common. There would be plenty of participants to study. I support this fight to get more research done. [S.T, Smethwick] At the age of 64 I had a transvaginal scan yesterday. I have fibroids. after the scan I went to get my clothes on, the consultant radiologist had gone. I have had no advice or further information of my options. Further reserch needs to be done, also education for the medical proffession. [M.A.W.B, burton on trent] I have had two operations. First in 2003 and then again in 2006 and the fibroids are back which means I now face yet another operation. Please please please can you put more into research. This would save the NHS money as giving so many women endless operations and hysterctomies becomes a bottomless pit. Not to mention the relief to millions of woman. [E.B, Greenford] Tomorrow I am facing a myomectomy, which I don't want but due to lack of support and Information i feel forced into this option. More Research is needed so more treatment options are available to women [S.H, Harrow] I was diagnosed with fibroids in 2000 and is a condition that is excrutiatingly painful that hinders the quality of life. More research is needed now! [T.S, London] research absolutely essential by dr/gaenocologist who should encourage patient participation & help lobby govt. [S.L, Rotherhithe] I am 51, this condition began a year ago and it is becoming increasing more pain and uncomfortable. It comes and goes I attend both British Doctors and the USA doctors. I started menopause at47 and my UK doctor says no HRT I only have one more year to go??? So why now with fibroids. I used to get Bio identical Hormones treatment in the USA 33 bottles of bloods taken for a full account of my body and the Bio creams made in Dallas TX, This was requested by a Dr Parker in Virgina Beach VA. BIO IDENTICAL treatment is class as going to a with doctor in the USA they are not proven. The best books around are the Susan Summers books for info. More research is needed with the help of people like Dr Parker. BILL Gates, mother attends his clinic to see him.I just wish the USA an the UK could work together on their client bases, for research. [V.W, Nottingham] I have suffered for over 18 years, passing out from chronic pain, heavy periods, miscarriages, passing blood clots, total incapacitation where i can not move or do anything for myself... but all i was ever given were pain killers and advice that it will go away sometime, then one night i was taken to A&E, unconcious and when i came to the Dr found out the cause, ordered for my hospital file and booked me in for an emergency myomectomy( my abdomen was equivalent to a seven month pregnancy). this was carried out two days later and was well for some time, but as i was suffering from secondary infertility (been pregnant before but have had no kids because of miscarriages)i somehow had regrowth of the fibroids.i toiled on with pain killers until my Dr eventually refeffered me back to hospital Gynea. consultant arranged US scan, MRI scan then booked me in for an operative laparoscopy this weekend. Fingers crossed, it will help this time as i am fedup of the pain, suffering and all the painkillers. All along i've been told to agree to hysterectomy although i just turned 43 last month (July). Social workers and uni lecturers and many others have all laughed it off as it not being a disabling illness, Alas.. what do they know . More awareness is needed to alert the general public that there are some of us who suffer chronically whereas others ill never even know that they have fibroids- as they will be just like (carriers o a disease- who are never affected by it).. [F, london] Reading all the stories on the site, tells me that I am one of the lucky one who was not let down by her GP. However, my referral to the wonderful surgeon who gave me my life back took 18 months, during which I was admitted to A&E for blood transfusion on several occasions. Why does it take that long?? This creepling condition has to be taken seriously right from the beginning! [C.B, Thelwall] much more research is needed, i have been suffering for over twenty years. doctors are too quick to recommend hysterectomy. [M.S, enfield middx] Research into awareness, scanning, diagnosis and treatment requires urgent funding. I had years of pain and misery, completely unaware of what could be wrong and was only scanned after breast cancer diagnosis so too late to have children now. The Dr was hoping Tamoxifen would shrink the fibroids but they are still growing, pressing on my bladder and making my stomach look bloated. Please consider allocating funds to raise awareness of and to research this debilitating condition. Thank you for reading this. [J.S, Kempsey] I've had to indergo surgery for this condition twice and I know further research needs to done in order eliminate this condition, I'm also aware of some wemen who have died because of this condition [J, Southall] My mother and four sister have all had fibroids and gone through the many procedures and pills to no effect eventually all having a hysterectomy. I am 45 years old and have experienced chronic pain and heavy bleeding that stops me enjoying my life. I refuse to go through the various procedures and pills and prefer the depo contraceptive injection however a locum gp refused to continued to prescribe me saying I was at risk of cervical cancer due to the fibroids. I am waiting to speak to my gp and gynae next week for information. [G.C, hull] THIS TYPE OF DISEASE MAKES WOMEN\\\'S LIFE WOREST; BECOUSE SHE HER SELF LOOSE HER CONFIDENT DUE TO THAT FIBROID,WHICH MAY CAUSES INFIRTILITY SO IT SHOULD BE KEPT TOP OF AGENDA [M, HYDERABAD] i will like to see more funding go into resaerch for Fibroid, it one of the most common ailment affecting women especially at a time where women are delaying having delay having children largely due to economic reason or easons beyond their control. thank you [S.A, Welling] more fibroid research needs to be undertaken. the NHS does not suggest herbal methods do these work? [R.C, doncaster] i m supporting this petition ,i hae tis problem and i feel like there not enough to help woman in my case [J.N, manchester] Just diagnosed with large 10 cm by 9cm fibroid after six months of visits to GP with increasingly distressing symptoms. Now being told fertility compromised- am 36 with no children. The whole experience traumatic with unsympathetic doctors and still none the wiser to treatment options.Apparently its perfectly acceptable to walk around carrying a melon sized growth inside you. Exhausted and it has only just begun...... Please more care, more information and educate GP's.RB London [R.L, London] If men had fibroids, we'd know the cause and have much better information flow and treatment for it NOW ! ! Sort it out, boys at the top - would you fancy a huge great blood-fllled balloon inside you? I think not...... [B.C, London] Have suffered terribly with symptoms caused by the fibroids. I found that knowledge on fibroids in someone my age (27 at the time) was very limited. My gynaecologist ACTUALLY told me to just go and have children quickly and then have a hysterectomy; she didn't even mention that the fibroids would keep growing. More research and staff education is definitely needed. [C.O, Dagenham] more awareness and funds are need to help fibroid sufferers this had totally damaged my life [S.R, st austell] I am 30 years old and suffering with fibroids. As a result I am now anaemic and my symptoms include passing out, extremely painful periods and bloating which makes me look like I am 3 months pregnant. I have so far been refused a hysterectomy because of my age and because as the hospital put it I may want children in the future even though I have made it quite clear that I don't. I find it quite incredible that if I was 40 or over that would be the only option I would be given and yet at 30 having had enough of suffering and having no life I am not allowed one. I am an intelligent and educated young woman who has explored other options and knows the risks involved. I am blessed with a child already and I don't want anymore, I also don't want for my son to keep witnessing me suffering as it is affecting him too. I just want my life back and it's time the medical profession should listen to women suffering with fibroids and help them instead of continuing to let them suffer! [F.W, Arnold] I have just been diagnosed with having two fibroids.I'm due to see my GP again to discuss my options. I believe I've had them for a while and have suffered with severe pain and depression. It has truly affected my quality of life and wish I had been diagnosed earlier. Treatment options seem some what severe. Further research needs to be carried out. I'm a registered nurse and I've had to completely change my working life in order to cope with my symptoms. It's dibilitating to say the least. [S.A, Liskeard, Cornwall] i have fibroids and gp's keep assuring me it's nothing!! So i sit back and wait until they grow into a football???? i find the approach unsatisfactury....more reaserch needs to bee done. [M, oswestry] I have fibroids and has been diagnosed for two years. And I have heavy bleeding every month, which turned out to be very painful. Every time I went to see my doctor I am Forbes off with more tablets that doesn\'t help me at all. I have asked on several occasion if I could see a gynylogist and my gp has Sid ghat it is not a necessity, as the government has put fibroid treatment as a non emergency ilness. Tried bleeding for three months on the trot. It is very depressing and makes you feel tire all the time. [J.H, Abingdon] Been diagnosed six months ago. Has been prescribed tranexamic acid to be taken on first day of period., three times a day. Not working, so I am very much in favour of more research. [J.H, Abingdon.] I really feel more research needs to be done on fibroids, after unexplained abdominal pain, piles, irregular and very heavy bleeding, I had 2 abdominal scans and was told all was well. I have just had a transvaginal scan and they have diagnosed a fibroid growing in my uterine cavity. I find fibroids tend to be written off as so many women have the without problems. [D.L, sheffield] I have just been been told that i have fibroids, and i need to know what they are all about and how they develop. [M.D, Dudley] I had been suffering from fibroids for the last 2 to 3 years without knowing it. I only became aware of it when I fainted one day and started to get a fever and bloated stomach and I became aneamic and was admitted to hospital with an infection. My consultant decided that the best option for me would be a myomectomy four months later but the risk was that I may have to have a hysterectomy as my fibroid was very large (3kilos) and also if they found anything life threatening during the operation. I am glad to report that my operation was successful and I only had a myomectomy and my uterus was preserved. My consultant and her team were absolutely wonderful and I hope that this good work can be encouraged elsewhere and I was lucky I have a good GP who referred me to the right people who dealt with me successfully. I wish all women can experience the same treatment as myself. C.S London [C.S, East Ham] house wife [A.B, Malton] Research is desperately needed. [J.H, Southsea] im going to the hospital tues the 18th to see a consultant about anemia and fibroid treatment, my gp who is male has told me to not allow myself to be bullied into an hysterectomy!!! We need to be given more options and have better treatmemnt and understanding, not bullying into radical, major surgery!!! [T.G, st leonards on sea] For a condition that is so common, it is remarkable that so little is known about the cause(s). A knowledge of the cause must surely help provide the safest and most effective treatments and hopefully prevention. [S.V, Harpenden] I suffer with fibroids and am about to have a hysterectomy. Please get more research done for this problem,save others suffering the same way. I wouldn\'t wish fibroids on my worst enemy they are that bad! [C.L, Hailsham] I have been suffering for years and just put up and shutup it was only when I heamorraged that something has started to be done about it. It was lack of knowledge and embarrassment that has led to years of pain and aneamia. [L.H, Aldeby, Beccles] I am really struggling with a large fibroid that cannot be removed without a hysterectomy. I have found very little information and what there is is very confusing. There seems to be no support for treatment options - it's either ....live with it and put up with the effects it has on your whole body or have the big 'H'. [F.G, Cardiff] Really shocked by how little my doctor knew. Was treated as though it is normal to have fibroids. [A.A, Sudbury] I would welcome any research into this as all the women, including myself have suffered greatly from this, it affects your quality of life and has at times disabled me completely. [S.L, Edinburgh] Just discovered when having an MRI scan of the lower spine that I still have fibroids at the age of 67. I assumed they would have shrunk after I ceased taking HRT 10 years ago. Apparently that is a myth. [S.G, Louth] more reseach and early treatment [M, slough] Over the last year and a half of having significant but evolving problems with fibroids I've been stunned at the lack of knowledge, the haphazard way I've been treated, the fact I've not been informed of my treatment options and the difficulties I've had getting access to those treatments now that I know about them. This condition affects most parts of most days in some way and is treated as virtually irrelevant by the people I have seen. I'm still in the middle of trying to get an appointment with a specialist, a process which has taken 12 weeks so far (despite me calling the surgery most days and even contacting my MP at one point) and I STILL do not have an appointment set up. It beggars belief!!! So, not only is the condition difficult, the amount of knowledge about it pitiful and difficult to access and the treatment options hard to assess and access but the system seems to conspire against one to make it all hundreds of times as hard as it needs to be. Very fed up indeed! [S.H, Leicester] I couldn't agree more. Further research is needed. After several years of heavy periods, a hysteroscopy and the grim discovery that I can no longer have children I can honestly say that Fibroids have ruined my life. I am now, at the age of 40, contemplating what options are left for me in terms of dealing with this condition. I feel completely abandoned by the medical services in terms of my options. [A, Slough] I have suffered from constant discomfort from large fibroids for a few years. They caused complications during pregnancies, and now with a mirena coil fitted 8 months ago I amd still having heavy period every 2 weeks at least. I am low in energy, constant light headedness and probably very anemic. I still look and feel pregnant. I would love there to be more research and action to help people suffering from fibroids. [K.M, Belfast] I would like to see more research done around the risk of post partum haemorrhage for women with fibroids.Midwives and consultants seem to insist on putting women into a "high risk" category when a fibroid is picked up on the scan but there seems to be scant evidence to back up the commonly cited risk of pph. [E.R, efail Isaf] I am diagnosed with fibroids last week. The gyneacologist send me a letter with the diagnose and only treatment option: hystorectomy. No further appointment to talk options through nothing, just two lines. This is not right! I still have the expectancy to become pregnant even though I am over 40. [C.P, chipping campden] As a sufferer I really do advocate more research I do believe that gender and also colour based discrimination is at work dealing with this issue. It is debilitating for many sufferers - more investment in holistic assessments of causes and treatments is vital. [A.A, London] It\'s unbelievable that currently the only truly effective treatments for fibroids are highly invasive - for what is an extremely common problem amongst women of all pre-menopausal age groups. [C.S, Bristol] More research is definately needed. I wasn't aware fibroids was such a common complaint. I paid for a medical as I had these symptoms for years and was fobbed off by my GP without even a physical examination! At my medical they have told me i probably have fibroids and have to now go for tests etc. I am angry I had to spend my own money to get a diagnosis! [D.N, Leicester] Just been diagnose with Fibroids. Yes need more research please. [M.B, Manchester] Just had a scan and been told this is what has been causing my disabling periods for 10 years. After visiting Doctors so many times and getting pills and coils which havn`t worked. So, so hard to live life properly at the moment and hold down a physical full time job looking after others. Need to read up now and decide what can be done. [J.H, York] Fiboids have added to a pretty poor situation and I need them out asap. Blood loss is terrible and energy sapping. [J.G, swindon] after reading how women have suffered i feel we need the research and not to be forbed off i was diagonised about 3yrs and told they will strink due to menopuase even thou i am having irregular bleeding and left it till now to sort myself out only becuase it was so heavy and the doctor i see was a male locom doctor that explained more to me so still waiting to see female doctor to see what the out come will be but after reading on this and how women are suffering iwill be hoping i will get answers. [T.B, new eltham] Considering the number of women suffering from fibroids I feel alot more research is required into this condition. In addition to educating women on the treatments available to them. Whilst making doctor\'s accountable for not ensuring there patient is fully aware of the treatments available. All to often i hear of doctors recommending a hysterectomy if over a certain age or adopting a \'wait and see\' approach until the fibroids become quite large that the only option is a hysterectomy. [K.J, Leytonstone] hi i have a 5.6 fibroid and the only option i have been given is surgery this has totally freek me out as i am petrified of a gen anestesica why are we not given other options my gyno thought i was been stupid and couldnt see my fear cancelled it due to being so frightened [S.T, worcester] More work needs to be done here. I am so sad to see the lack of interest in this issues that affects only women. I keep feeling this is just so sexist. If a man went to the doctor and complained of erectile dysfunction, or similar, he would not be told to chop his willy off!! [B.K, Shepshed] It would be fantastic if more research were carried out into this condition. I've been in pain for 2 months, but am told that fibroids 'don't normally hurt' so am both afraid that something else is wrong, and concerned that my pain will be ignored as I wait for weeks or months to be seen by a gynaecologist. [D.H, Edinburgh] As someone who knew so little about fibrods until I started to suffer in 2007, I was stunned that there has been so little research possible for something so common. I support this campaign wholeheartedly. [S.M, Bristol] I suffer with Fibroids and have done for a number of years..... I am currently waiting for my 3rd operation for removal.... I would like to help in anyway i can to help with research into this condition!! thank you x x [J.B, Little Eaton, Derbyshire] I was frightened when I found the lump, now I've seen the doctors I'm confussed about which treatment and this condition is so common - we need more research [A, London] Research would be a great help in improving the outcome of this condition I'm 29yrs old and it has severely affected my life and my future. [J.K.M, Dover] I am scheduled for myomectomy operation on coming 8th February 2011. My doc said, if there\\\\\\\'s blood loss happen during the operation, she might have to perform hysterectomy since im anemic and large fibroid (12cm) and i can feel it growing bigger and bigger. I am not married yet. I wish to have kids one day. it is really worry me when the doc said that. Beside that, i know there\\\\\\\'s there\\\\\\\'s a risk of fibroid recurrence after myomectomy. i want to know how to prevent from new ones to form. [I, kuala lumpur] personally i dont think GP is doing enough to help their patient, i notice i have fibroid when i was 30 and i was in and out of GP surgery nothing was done no help offered, when i reached 40 the only advice and only option was hysterectomy which i refused, the my son pass away at the age of 18 four years ago and so is my symptom, from me being under so much stress so did my stress got worst, the worst it get the more pressure i had for my uterus to be removed. so i deciede to go to my gp after my last hospital appointment with sever anemia and 8 pint of blood transfussion to be refered to other hospital for embolisation but the first thing offered is hysterectomy, with none of my involvment in the discussion and then i told the doctor the only thing i want is UAE. after going back and forth i was told it will take three mont i told them i will wait. i think more neede to be done to educate all the doctors that women womb is not a pieces of meat to be wisked out and thrown away. i think more needed to be done with regards to Fibroid and treatment [O.P, abbeywood] There needs to be a standard medical response when a woman first complains of troublesome fibroid-like symptoms or when a fibroid is diagnosed with a scan. An early diagnosis is vital so that a fibroid can be discovered when it’s small and more manageable. At the outset, a woman diagnosed with a troublesome fibroid should be fully informed of all possible treatments and scenarios – fibroids can stay the same size, they can naturally shrink back, or they can grow – and in some cases grow extremely large – so that an informed choice can be made as to the best course of treatment. In addition, once a troublesome fibroid is detected, a GP referral to a gynaecologist should be standard practice. The fibroid should also be regularly monitored and scanned to check for rapid growth. I had a small fibroid which ballooned in the space of 2 years and 8 months and is now the size of a melon. During this time, not once was I offered a scan in between to check for growth or a consultant referral. Between my first and second scan, my fibroid was allowed to grow and grow and now my treatment options are basically limited to a hysterectomy, or I can ride it out to my menopause which might be five or more years away, during which time my fibroid could continue to grow. The IUS which I had fitted has barely made a dent to my horrendous menstrual cycle. GPs should also be fully educated about all treatment options and scenarios. It is shocking to read comments from so many women who’ve signed this petition that the only treatment they’ve been offered was a hysterectomy when there are other options available, ranging from drug therapy to other surgical interventions. A hysterectomy is the most radical of all treatments – irreversible forever preventing pregnancy – and it should be only be offered as a treatment of the last resort. Although fibroids are non-malignant their impact on a woman’s health and quality of life is NOT benign – excessive menstrual bleeding which restricts a woman’s life, anaemia, weak bladder and pelvic pain and pressure are just a few of the symptoms. Fibroids affect one in five women in the UK and account for 20 per cent of Gynae consultations. It would cost the NHS far less if fibroids were detected early and managed and treated when they’re small. If only for this reason, fibroids (and their symptoms) should be taken more seriously and the medical response to this health condition should be systematic. Finally, and equally important, more money should be invested in research on the causes of fibroid growth so that therapies can be developed to treat them more effectively. [M, London] I have had this problem for the past 5 years and words can not explain the pain and discomfort it has had no my life [I.O, Bellingham] I'm also suffering from fibroid and am looking for the best option to remove it. [D.G, Earlsfield London] Women should be offered many options apart from hysterectomy for gynaecological problems, and these should be researched and perfected. [C.T, Lutterworth] I will more attention and information from the clinicians regarding fibroid. [T....H, Dagenham, Essex] I was very anaemic/heave periods although going through menopause and my GP looked into this and I went for a scan and found fibroids. I am trying to find out more before seeing consultant. I am pleased for this site and agree more research, information, support and understanding needed. [A, London] For far too long woman's health issues have fallen to the bottom of the heap. We urgently need more research to inform evidence-based practice in the area of fibroids especially early diaagnosis and alternative treatments to full hysterectomy or 'put up with it', our current most frequently offered options after years of pain and misdiagnosis. [C.C, Willingham] I feel there should more research into fibroid. [E.O, Islington London] Fibroid is a common problem in women. Please help us from our misery. [J.P, Bracknell] There are all sorts of associated symptoms which can occur with fibroids such as anaemia and their symptoms, pressure symptoms, hormonal symptoms which seem to be disregarded by the medical profession except when doing research. Women have a right to have their symptoms acknowledged and treatment provided in order to alleviate these symptoms - not to be told that they are not due to fibroids when it is clear they are and those symptoms are often taken into account when doing research. [D.B, Forest Row] I feel that the research needs to be more as I have fibroids and this affects my life everyday. I feel that n one really knows much about them or why they have developed. Also I would like to have children one day but know this could mean I have a higher chance of not being able to have children. [K.B, Blackwater] In my early 20’s I started suffering from severe abdomen pain, doctors investigated and concluded that I was suffering from IBS. It was not until my early 30’s when I was unsuccessful at falling pregnant that a GP carried out a pelvic examination and found a large mass, an ultrasound scan showed a 20cm mass. After a myomectomy fibroids were removed and I was lucky to fall pregnant and give birth to a baby girl. However now at the age of 36 I have to face the option of a Hysterectomy due to multiple fibroids. I feel early detection of fibroid is very poor; throughout my 20’s I went back to GP’s concerned that I was continuing to suffering from extreme pain and blotted stomach, my concerns were dismissed and told the symptoms were just IBS, after 10 yrs of pain I was given the diagnosis of fibroids and only one doctor had the foresight to carry out an internal pelvic examination. [S.C, basingstoke] I think this needs to be looked into definitely as it affects so many women. [S.J.R, Farnborough] This is a cause that needs more research to help the huge number of women that suffer with these. [V.S, Ascot] More research as options are very limited on NHS and seams hysterectomy is nearly always preferred path [H.R, holmfirth] Really necessary research - please give it priority. [R.H, Woodley , Reading] I was diagnosed with Fibroids a couple of years ago, I dont belevie I ahve been given all my options, I have had to reseacrhc and tell the doctor what I want - to save my fertility. More infoamtion and options need to be available. [L.W, Rotherham] hysterectomy should not be the only option, more research is needed! [M.M, pinner] I have been diagnosed with fibroids but as i am in my early 50s doctor says to leave them as they shrink after menopause... still waiting and very uncomfortable.. [J.S, London] A horrible debilitating condition affecting all aspects of a woman's life. Let's get something done now with research. [S.L, Camberley] A very worthy cause [I.M, Congleton] Very pleased to sign this petition [G.C, Razac de Saussignac France] I have multiple fibroids that cause me pain, sadness and embarrassment because they are so big I loo like I'm 4 months pregnant and have to deal with people constantly asking me when the baby is due. This also makes life worse as I had a miscarriage at 5 months 4 months ago and I have to lie daily just so I don't make a bad atmosphere for everybody around me. I'm only 33 and still want to have children although because I have so many fibroids many say hysterectomy is my only options. I am amazed as this is a very common problem nothing has really been done to help women like me who from once being very confident in life working in musical theatre can now no longer do my job and feel less of a woman. [S.K, welwyn garden city] More research needed to identify the potential causes and risk factors for fibroids. Simply stating it is "more common in Afro-Carribeans" is not enough. [P.B, Bristol] I suffer from fibroids myself, and it has affected my life drastically. [K.M, manchester] Why is it that so many Doctors think a women should have a hysterectomy to be rid of fibroids. There are women who may have lost children to illnesses and they may want the choice of having more children. All options to be rid of these fibroids should be looked into and the women themselves should investigate these optons themselves. After all its their body. We have rights too. [M.L, Dundee] I am currently under treatment for fibroids and feel that unless you are a sufferer, there is not a great deal of understanding or sympathy out there. We need to find out if there are preventative measures for fibroids at the very least. [E.C, Newtown] I have just been diagnosed with one 10cm fibroid which causes me no symptoms except heavy bleeding for two days. My gynaecologist did not hesitate in advising me to have a partial hysterectomy. I am 46 with two children. His comment, 'Why keep your womb when you no longer have any use for it' astounded me. I am yet to find a solution as I am not suitable for guided ultrasound but there are other options open to women. The last resort should be hysterectomy. GPs do not have enough information. [K.S, Ealing] I have suffered from fibroids since 2002. I've had some removed but at present have been dianosed with more, the biggest of which is 9cm and still growing. It can be painful and recently seems affects my energy levels and causes bloating. I don't want a hysterectomy due to the fact that it just causes more problems. So, yes, more research is needed. [P.M, Meppershall, Beds] I think that every woman should know as much as possible about this condition, so that they can make informed choices about their treatment, and therefore potentially preserve their fertility for longer/ choose what is right for them as everyone is different [P.I, crewe] Fibroids affect women's quality of life. We need more research into effective treatment [S.G, Bristol] I was a suffering for many years so any research into Fibroids would be goo for future generations. [J.M, Camberley] not enough nutritional and lifestyle information is offered. I have had to seek out alternative practioners myself to avoid the option of hysterectomy. Stress is one of the greatest contributors to the growth of Fibroids due to the release of cortisol, GPs do not tell you this.... [J.H, Fairfield Road] I have fibroids and feel almost abandoned by the medical profession. It\'s treated so insignificantly, almost as a non-problem but there are so many physical/mental problems that go along with it. I am currently fighting to get my fibroids removed but, as a 37 year old women eho hasn\'t started a family yet, this is proving very difficult [M.W, London] People find this condition funny but do not realise how painful it is [E.H, Cambridge] if just found out i have them a very large one i have been sent away with no info just been told to wait to see someone their is not enough help out their their need to be more [S.G, stafford] Having fibroids reduced my chances having a baby by IVF as I had to be put on long waiting list to have them removed before attempting IVF. [M.R, Barnsley] i am 47 and just had a uae. the consultant was great but it took years to get a diagnosis. my gp always said it was my age! suffered heavy periods and anemia for years, as a result my fibroid was 9 inches. women should be taken seriously about this, not dismissed. [F.S, birmingham] Having suffered from heavy periods for some years I have recently been diagnosed as having several fibroids. Life has been extremely difficult for the past three months as fibroids affect every part of your life, and I am now virtually housebound due to heavy bleeding. If I hadn't burst into tears in my Dr's surgery (a woman!) I would have been waiting a further three months to see a consultant, instead I have been fastracked with a three week wait. And it would appear from reading the other comments I am one of the lucky ones. Barbaric. [A.F, Highworth] I have fibroid which affecting my quality of life but do not really want to go down the route of surgery, so more research would be good to avoid surgery. [B.H, Neasden] It is outrageous that the real cause of fibroids is yet unknown and that surgery is the ultimate option for most women. There needs to be more research into this condition, so that a permanant cure and a means of preventing fibroids can be discovered....hopefully in our generation. [B.J, Edgware] This disease has been around for years. Its about time there was more research done to help thousands of women still suffering from it. [P, Welwyn Garden City] i think more time needs to be spent looking into fibroids, which affects so many lifes..and costs so much , time off work, medication, operations...for something that hopefull in future we will know more about. [M.R, lancashire] I live in Canada but seeking surgery in Europe. funny huh! [F.M, Montreal QC CANADA] Hope there will be a none- hysterectomy cure for fibroids in the future so ladies like me will be free from pain, heavy bleeding and misery. [L.E, Ashton-U-Lyne,] I had a 7cm fibroid causing constant pelvic pain, backache, nausea, frequent need to wee and very very heavy periods. I have been prescribed Esmya which is an emergency contraceptive a side effect of which is to shrink fibroids. So far after 2 weeks all pain gone and longer between trips to the loo. Course lasts for 3 months and I am optimistic but more research still needs to be done and perhaps fibroids can be prevented. Google Esmya. [H.T, Weymouth] Much research is required to help prevent the consequences of a spiralling problem? [D.B, Birkenhead] After years of being told my abdonminal paid was a figment of my igination, i was finally diognosed with Fibroids. It should not have taken this long to find out and 3 years on im still in paid and doctors still refuse to do anything because they dont know enough of why they occur. Enough is enough. [C.M, London] I have fibroids and suffer heavy periods monthly. I am glad to find this website and read the much need advice and information. [C.M, London] I have lived with multiple fibroids for nearly 15 years. More research is definitely needed. [S.W, Wimborne] I wish i had found this site earler......i actively encourage this long awaited research! [A.S, Blackstone] After 5 years trying to fight against full hysterectomy, including failed attempt at fitting mirena coil, the biggest of my 4 fibroids is the size of a 4 month pregnancy. Have finally signed consent form for op today but am terrified. I am 47 and can\'t help feeling it shouldn\'t have come to this. Desperately need more research [S.H, Prescot] Fibroids aren't life threatening but they effect the daily lives of millions of women and the treatment options just aren't good enough. [C.M, pewsey] Please make provision to champion research. Give women power and choice. Our children will suffer due to lack of knowledge. S.K.K. Surrey [S.K, surrey] A condition which severely compromises women's quality of life and is the cause of many days off work" Research into causes and treatments should be a top priority as it is a very common condition. It makes financial sense for the NHS! [P.H, Matlock] Fibroids are a painful and also a nuisance in Womans lives., I had them when I was younger and my daughter has them., they made my life uncomfortable., also unbearable and at times I could,nt wait for my menopause just to rid of them., I have 3 daughters., and also I dont wish these gastly objects of growth on anyone woman., the more research into these growths the better,,,,,,, [P.F, Holborn., London.,] I have four fibriods, one invading the lining of my womb. After 8 years, age 47 I am now suffering extreme bleeding symptoms. Cycle all over the place. Cyklokapron, now back on Noresthisterone, and new this week mefenamic acid, I am waiting to go back to St Marys (Professsor Regan presentation is a must to see Google it) MRI I believe is the way forward. Ladies of all ages can and will benefit, funding has changed for St Marys (they have their own MRI suite) and cannot see me now unless I go private hope to see her again next week, but I strongly recommend all of u read her results AMAZING, non invasive beats embolisation hands down. Fingers crossed for me and you lets push this one for us all. 2 days post treatment back at work !! [B.N, Coventry] I would like to be able to find out more about fibroids and miscarriage and pregnancy as I feel that information is vague and GP's do not give enough info to fibroid sufferers [A.J, Bournemouth] I didn't even know what fibroids were until I got a diagnosis. If 40% of women are supposed to have them then why aren't they known about in the general population. I very much doubt I have spent my (so far) 20 years National Insurance contributions on NHS treatment, so I want some of them spent on publicising the existance of this condition and research into the condition!! [A.M, Downpatrick] We want and need more research so that women have more choices as to treatment, not just hysterectomy. "I don't know what you're keeping it for" was my doctor's comment. In 2012, this attitude is outrageous and offensive. [C.B, Bexleyheath] Fibroids are a distressing matter for some women, including myself, and I feel that more research should be conducted in this area. [K.H, Cheshunt] Women need to have better awareness of fibroids and more money needs to be invested in research and treatment. [K.J, London] NHS choice seems to be hysteroscopy or full hysterectomy. surely there must be other options [C.S, Dorchester]
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This site was last modified on Monday 26 March 2012 @ 10:22:00 PM.

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