 Woman2Woman Fibroid Support |
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History |
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How British Fibroid Trust was born? Our journey begun with the fact that Dr Nicki On, a fibroid sufferer, recently had a joint myomectomy operation in late Aug 2008 by Dr Diana Hamilton-Fairley & Dr Rajesh Varma (Consultant gynaecologists) at St Thomas's Hospital (London). She was disgnosed with 3 fibroids in late 2005, with the largest one measured the size of an orange. She was refused the treatment which allowed her to retain her womb by 2 hospitals on the ground of her age. In desperation to avoid hysterectomy, she took an unconventional approach to contact Dr Diana Hamilton-Fairley directly at St. Thomas's in March 2008. By this time, the largest fibroid had grown to the size of a melon. She was extremely grateful for Dr Diana Hamilton-Fairley's pro-patient choice approach and as a result she received an abdominal myomectomy. During her hospital stay, she was inspired by Dr Rajesh Varma to set up a UK wide information hub for women with fibroids with the remit to bring more awareness about the condition that affects lots of women and campaign for further research into the causes of fibroids and search for better treatment(s). Fibroid has debilitating effects on the quality of life of many women with adverse effects on psychological and social functioning. Many suffer from heavy periods, chronic pelvic pain and infertility. Famous women, for examples Jerry Hall (super model), Beverley Johnson (supermodel), Juanne Fuller (actress) have also been affected by fibroids. Nicki also strongly believes that not enough research is being carried out on fibroids simply because it does not kill you! Furthermore, fibroid has such a low profile and medical opinion that is succinctly described by one of our website user in Ashville (NC USA), quoted verbatum:  One doctor I interviewed for myomectomy told me when I asked him what the breakdown was for fibroid treatment choices from the women that came to his practice with fibroids...."almost all of the women in our practice and all the women in ashville (my town) and all the women in this country who come seeking care for fibroids choose hysterectomy, it's what they want". to which I wish I had replied "would you choose to cut off your penis if you had a non-cancerous tumour"? or "of course, it's what they choose, because it's what you offer and what you emphasize and what you prefer".... "and you suck at myomectomy because you hardly ever do them. 
After Nicki's fibroid treatment, she would like fibroid to be a better-known condition with a higher level of support. |
Our Vision Dr On (Founder) and Dr Varma (Trustee) share a vision that fibroid sufferers can be empowered and their quality of life can be optimised through:
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This page was last modified on Thursday 20 August 2009 09:20 pm. |
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