Included here are articles and stories written by readers or others.
|
pipa 's story |
| the worst hell ever |
Hi all i'm 42. i have suffered from fibroids for 8 years.2years ago I had the UAE procedure but it did not relieve my symptoms. I had it redone again 4 weeks ago. i'm having my period now one month after the procedure.It has been so heavy and full of huge clots and painful too. has anyone experienced this during their first period after the procedure? I'm going up the wall. been a prisoner in my house for 4 days. the flooding is so severe i have to used the super plus tampon and 2 sanitary towels one on top of the other to stop leaking everywhere. please help if you have gone through this. i'm so worried. |
london w10 4ep [2010-05-26 03:34:25] |
|
Louise 's story |
| Trying to get pregnant with fibroids |
I am 35, had a myomectomy 3 years ago and my periods are incredibly heavy again.Norethysterone is keeping the periods at bay. I am trying for children however clearly no success. I have recently discovered through this website and '2 women's health' website that a new procedure is available - MRI guided focus ablation. On this website it explains that this procedure is only for women who do not want children in the future however on the '2 women's health' the advice given is that women should wait for at least 3 months after the op to conceive. Can anyone please give advice as I have an appointment within the next 2 months with the IVF and Gyni clinic and I would like to go equipped with as much information and advice as possible?
Many thanks,
Louise |
Arbroath DD114RD [2010-04-25 13:56:26] |
|
Debbie 's story |
| FIBROIDS/PAIN |
I am 41 and for many years have had a lot of gyne problems. After many years my g.p discovered my linning of my womb was started to get thick! then thereafter i had a small fibroid followed by a larged one at the back of my overies which they were very painful along with the heavy periods.
Almost two years now and the fibroids had been removed and I am still suffering with the heavy periods and pain and my gyne informs me i sound like i am now suffering with endometriosis!
Does anyone know if fibroids come back after operations and how long!
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London W8 6ef [2010-04-20 12:23:16] |
|
immaculate 's story |
| miss |
am 35 years and ihave been with fibroids for 7years ihave one child she is 7years and 3 miscarriages in 2005,2005 another 2009 i have very painful periods and lot of bleeding i would like to have an operation but west middlesex hospital takes its time to decide and idont know what to do |
hounslow tw3 3lf [2010-04-15 18:28:16] |
|
R 's story |
| fibroids and infertility |
I was diagnosed with fibroids when I was 27 and had the embolisation treatment, that was available in London as a clinical trial. that appeared to deal with the heavy periods and bladder infections so consequently I did not think much more about them until recently. I've been trying to get pregnant for 2.5 years and have just started having tests. all the blood tests were normal, leading the gynacologist to conlcude the fibroids are the problem. theere are apparently several subserosal fibroids but the ultrasound was inconclusive so the next step is an MRI or CT scan, followed by possibly myomectomy. If anyone has experience of getting pregant with fibroids or following treatment from fibroids, I'd be grateful to hear from you! |
Gloucestershire GL [2010-03-31 19:41:17] |
|
Eileen 's story |
| Miss |
I was diagnosed with a fibroid at my twelve week pregancy scan. Had it monitored for a year after and as it caused no issues I left it. Six months ago I noticed I looked pregnant and went back to my GP, after initial tests and going to various Drs was seen by the surgeon who I was under during my pregnancy. This was at the beginnig of the week. He promptly told me that it was now the size of a 32 weeks pregancy and I am booked in for a hysterectomy in two weeks time. I did not question it at the time as I was too upset but have now asked to see him next week. I do not want this proceedure and am very upset and depressed at the thought of it. Is there any reason he could give that means this is my only option? |
Durham SR7 7HU [2010-01-08 23:02:28] |
|
Ilita 's story |
| Dealing with fibroids |
I was first diagnosed with fibroids in 2000. My periods lasted for 7-10 days were very painful and heavy. I was aneamic, taking nurofen and iron tablets constantly, my cycle was anything between 18-23 days. I had two operations which were laparoscopic resection of fibroids which made very little difference. Within 2 months the heavy bleeding and pain returned. I then started research on fibroids. I started to take fibroid clear in feb 2009, I changed my diet, stopped eating chicken, sugary foods, cut out cheese, prawns which i love and really started to monitor what i ate. I also stopped using cosmetics with all the parabens etc. I started acupuncture and chinese medicine in September 09. My periods are now so much better, I do not take any painkillers throughout my periods, my cycle is now 27 days and the blood flow is more like a normal period. Not heavy and constantly flooding. When i asked the consultants/specialists if there was anything i could do to help my fibroids i was told NO. That is not true. You really can cure yourself, it just takes time, patience and discipline. I have suffered for years similar to alot of other ladies was always off work, couldnt go out. My life has really changed now. Dont let the doctors whip out your womb, try to heal yourself first. I hope this helps other women out there with the same problems. |
London SE22 0HP [2009-12-17 13:12:43] |
|
P 's story |
| Dealing with fibroids |
I am now 43 years old and I was diagnosed with fibroids when I was about 28 years old. I had my first operation which was a myomectomy about 14 years ago. I also had a cyst remove from one of my ovaries. I was told by my doctor that the fibroids would return which they have. I have no children although trying for years to conceive. I tried having assisted contraception where I ended up having a major operation as a result of a blood vessel being clipped in a lapascopy. As a result both my tubes were now blocked instead of one previously. In 2007, I started having bleeding betweem my periods I was then referred by my GP to the hospital where I did a number of ultra sounds, MRI and blood tests.
The prognosis was not good. I have numerous fibroids on the outside of my uterus,large and small ones plus a cyst on my left ovary. The doctors suggested a hysterectomy and this would be a high risk as I have had a few operations already. Thinking about this and how I feel within myself, I knew that I was not ready for a hyterectomy, so I started reading alot about fibroids, the treatments especially natural/complementary options. A few years before I had started to seek out nautural treatments, but now new that I really had to do something by educating myself and try other treatments. First I started doing acupuncture, chinese medicines, change of my diet by cutting out most diary foods, tried foods, eat less meat now I eat mostly fish instead of red meat and chicken. I have also started visualization/meditation, exercising and stretching, recently done yoga as it said yoga helps. I have been feeling very good in my body, my periods are now regular like clockwork. I have done another MRI which my doctor recommends to see how things are going. This I will find out soon. What I find has really help me in term of information was this book written by a doctor called Healing fibroids A doctor's Guide to a Natural Cure By Allan Warshowsky, M.D., and Elena Oumano. I brought on the internet. It has really given me an insight in the causes of uterine fibroids and what you can do patient to make your life better and of course to take charge of your life. I have my experience will help as well as inspire other women to take charge of their lives and to be able to change your life style to make your life better. |
London SW2 3TP [2009-11-10 22:11:20] |
|
Faith 's story |
| My Story |
I was first diagnosed with fibroids in 2003 or so. Prior to this time, i noticed that my periods were long, extremely painful and dark clots. I was in a very serious relationship then. Sadly for me the relationship ended because in our society,there is a misconception that once a woman has fibroid she's often unable to get pregnant.Infact i was scorned by some of neighbours especially as i was still single then.It was a sad period of my life..i lost someone i thought cared for about me and the operation was so painful, more painful than childbirth.
Thanks to God today i'm happily married to a wonderful man and i have 2 kids . |
Port Harcourt P.O. Box 24 [2009-08-11 16:48:06] |
|
Annette 's story |
| Abdominal Myomectomy - My Experience |
Hello,
I was fortunate enough to find this website when I was searching the net, finding ways to deal with my unwelcome visitors! I had a abdominal myomectomy and cystectomy on May 19th of this year and wanted to share my experience with everyone.
I have been dealing with fibroids and a large endometrial (sp) cyst since my late 30's - I am now 45. I don't have any children and at this point probably not - at least not my own! Like many of you once my fibroids and cyst were diagnosed with ultra sound, I pretty much played the "watchful waiting" game. Of course every month I cursed my body and agonized over what to do. I never had a period problem until my late 30's when the fibroids began to make me bleed heavily (super duper tampon soaked in an hour),cause pain and cramping and oh yea, the bloating! I too like many of you did not want surgery and pretty much since I was never anemic, my doctor left everything up to me. I played around with the thought of hysterectomy, myomectomy etc, etc for years.
I had a follow up ultrasound in January of this year and it showed that the cyst had grown to the size of a lemon. The ultrasound showed the 3 fibroids - 1 on the large size 8cm or so and the other 2 smaller to be pretty much the same size, no significant change. At this point my doctor helped me with more options about what I could do. While it 'seemed' obvious that nothing was malignant we could not be 100% sure unless I had the cyst removed. I had the blood tests etc., and everything was "normal" and nothing appeared canerous or out of the ordinary. I have been going to my doctor for over 10 years and I have the utmost confidence in his knowledge and ability.
At this point I knew for sure that I wanted the cyst out and while I was at it - deal with the fibroids once and for all. I was DONE with them and the symptoms they caused - they were affecting my life in almost everything I did, work, travel, fun, you name it - when you are bleeding like no tomorrow it really is awful! Back and forth I went with non-invasive procedures etc. My doctor even spoke to some of his colleagues for me. My doctor also explained to me that my 1 fibroid was large AND due to its location in my uterus - I probably would not be a candidate for a less invasive procedure. My doctor has done MANY, MANY (doctor for over 27 years) abdominal myomectomy's (even did 1 on a friend of mine). Right then and there I decided to have my own doctor perform my surgery. May 19th I had my fibroids removed and the cyst - 9 fibroids were removed (still shocked at that) and the lemon sized cyst and I got to keep all my parts!
Fast forward to today 2 1/2 months after my abdominal myomectomy and cystectomy. I have had 2 periods so far and honestly it was worth it 100%. My periods are "normal" no more flooding, no more pain, no more serious bloat!!! Hey, going to take months for my body to get back to "normal", belly is still swollen, energy level is getting there but still a bit low, just completed my 4th week back at work and every day I feel just a bit better!!! Run on sentence there sorry! I could go on about my hospital experience (great by the way) and I might do so later. I just felt like sharing with everyone out there that you have a right to feel good and to not let fibroids take over your life. Go out and get second opions, talk to people, learn all you can (this forum is a great place) and first and foremost - have a doctor you TRUST. If you don't trust your doctor, move on and find someone else. Everyone is going to have their own experience's good and bad. I know the fear, I know the aprehension, I know that surgery is scary - I felt like I was out of body the whole time!! Probably was......:) Please just take one day at a time and look at all your options. I am EXTREMELY happy with my decision and of course wondered to myself. why did I wait so long?'.
Please feel free to drop me a note or comment as I would be more than happy to chat about my experience further. And yes.....those mesh undies do exist and I was very happy to be rid of them when I left the hospital!!
Best of luck to everyone out there!
Annette |
Marin County, California 94939 [2009-08-03 03:34:03] |
|
Julie 's story |
| 57!! |
I have a fibroid that is sticking through my cervical opening. I am 57 years old. I had a vaginal ultrasound that cause heavy heavy bleeding with lots of clots.......I went to the hospital about 9 days after I started having heavy bleeding.
My hemoglobin was at 8.1. I received a transfusion. Felt pretty terrible - because believe me - for me to go to the hospital I was really sick!
Found a good doctor who is going to perform a Vaginal Myomectomy this month to remove the fibroid.
My heavy bleeding has completely stopped now but I am going to have the surgery this month. I think I almost died from the bleeding.
Can\'t give you anymore info until I have the fibroid removed. I first got diagnosed with the fiborid at the age of 52.
Thanks for listening,
Julie In Southern California USA |
Huntington Beach 92688 [2009-06-03 05:33:06] |
|
Charmaine 's story |
| Fibroids look like im 6 months pregnant |
I had fibroid embolisation back in 04, it did seem to work on the fibroids that were in the womb, but it was a very painfull procedure.Last november i found a big lump in my stomach, i went to the doctor who said it felt like i was 22 weeks pregnant and asked me if i was pregnant which i knew i wasnt...So she sent me for a scan, which was inconclusive the women who was doing the scan told me i had 2 big masses but she couldnt tell me what they were.So i was sent to see a gynnaecologist who was indian, i couldnt understand a word she was saying and she couldnt understand me.Anyway i was told it was better for me to have a hysterectomy, because if i didnt and just had the fibroids removed, the fibroids would grow back anyway.So for the last 4 months i have been on prostop injections to help shrink the fibroids ready for surgery which i am having in 2 weeks time.I dont want an hysterectomy but thats all they have offered me.I have received no advice or help what so ever,i am 49 years of age, pre menopausal so they seem to think because i wont be having anymore children they should just whip it out!!! |
Bridgend cf313dn [2009-05-18 11:17:08] |
|
Debbie 's story |
| Fibroids |
i have just found another specialist who is going to do the operation i want - not an hysterectomy - a resection - the first specialist i believe was a butcher - gave me injections i did not need plus taking 11 tablets which would not work because of the position of the fibroid - seek another opinion if you are not happy - my new guy is fab - has not mentioned hystectomy at all! i am having it done in the next few weeks - i have been bleeding for 8 months solid since the last guy took a biopsy - one had been done a month before on the NHS - it beggars belief! |
Cardiff CF3 2UR [2009-04-22 15:57:25] |
|
R 's story |
| Story of my 2 fibroids |
I found out I had one fibroid a couple of years ago but it did not bother me as it was quite small.
In February 2008, I went for an abdominal massage because I was having really bad periods. My masseuse found a huge fibroid. At that time I was extremely overweight and did not notice this fibroid, only when I felt down, did I find it. It is the about 6 inches big and extremely round. When I lie down it is like lying on a beach ball. Now I have lost the weight, it sticks out.
My periods are terrible, long drawn out painful affairs and I have bled so much that I am now anaemic. I flood for about 2 days and pretty much have to change my super plus tampon and pad every hour. I try not to go out during these 2 days as I find it too much of a hassle, plus I feel so tired.
I have tried the contraceptive pill and tranxemic acid but to no avail. I went for a hysteroscopy op (camera in vagina and take samples of fibroid) in Jan 09. The coil was meant to go in but the womb was so stretched with the fibroid that he could not put it in, it would have just fallen straight out again. The surgeon was shocked at just how big the fibroid was.
I've had an MRI and got an ultrasound next week. I am also going to speak to the surgeon to discuss my test results. He is desperately trying to avoid a hysterectomy and I hope that is not the option that is left to me.
If I have the option to leave the fibroid or have a hysterectomy I am not sure what I will do. I expect I will be having an op in July 09, I will keep you ladies updated. |
Reading RG30 1AR [2009-02-27 19:51:20] |
|
Lorna 's story |
| Fibroids & IUS |
I have been having what I would consider heavy periods due to fibroids for around 10 months now. My GP was great and referred me to a gyneacologist at a London hospital. My periods have been having a real effect on my quality of life; I have had to take time off work due to the heaviness of my priod and feel fed up with the whole thing! I have just had an IUS fitted (literally week ending Oct 3rd 2008) so am waiting and hoping that I will notice a difference in the coming months. Its pretty bad right now though.
Recently I found out I've got ovarian cysts too !. |
London E1W 1LQ [2008-10-03 16:38:07] |
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