British Fibroid Trust- fibroids, myomectomy, hysterectomy, uterine artery embolisation, hysteroscopic resection.

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Fibroids

What Is Fibroid?

How Is It Diagnosed?

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Hysteroscopic Resection

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Hysterectomy

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Uterine Artery Embolisation

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Welcome

British Fibroid Trust is set up for women with fibroids. We aim to:

Inform you what fibroids are and all available treatment options with the possible side effects so that you together with your gynaecologist can make informed choice on your suitable & appropriate treatment.
Be a venue/platform where women with fibroids can ease their anxiety by exchanging their experiences and discussing their concerns with each other.
Campaign for more research into the understanding of the cause(s), early detection and diagnosis and better treatments.

British Fibroid Trust is a UK based voluntary not-for-profit organisation which is run by volunteers. We provide balanced information, independent of health care provider's interests.
We Do NOT promote private or commercial practices of gynaecologists or interventional radiologists.

BFT Campaign For More Research Into Fibroid

Petition Signature Counter		Petitioner's Opinions
Target	10000	why is it that men just want to perform a hysterectomy when there are so many alternatives - i have just found another specialist who will do what I WANT - not what he wants [Debbie, Torfaen] I feel very strongly about improving research and treatment of fibroids. I recently had a myomectomy and there were complictions which resulted in me losing 4.5 litres of blood (approx. 75%); this meant that I nearly died and had to have several blood transfusions. Due to the surgeons having to work quikly, my right fallopian tube was damaged during the operation, which will affect my fertility. I have not yet had children and would like to in the near future, but my fertility has been compromised due to lack of funding, research etc. Please move this towards the top of the health agenda. Lavinia [Lavinia King, Bristol] Fibroids need to be top priority for research and male doctors need to be reeducated and to learn, listen and help regarding the pain and suffering that fibroids can cause. [Miss Deana Ellen Ferris, London] We, the undersigned, demand that the leaders of our government to put fibroids in the top of agenda for research fundings for better scheme for early detection and non-invasive treatments. [Catherine Hancock, Abertillery] . [vanessa baldwin, amlwch] I believe this is an area which needs much more research. [Catriona, Cupar] more research should be done [Fiona Wyllie, Ratho] Enact legislation to require the medical establishment to disclose all options available to women for treating fibroids. Provide sources for information to patients to learn more about each option including discussion boards on the internet wherein fellow-sufferers discuss their experiences in an open and candid forum. [Mary Collins, Bowie, MD USA] i saw a professional and all he wanted to do was a hysterectomy - i saw someone else and has a resectin a week ago and feel fab - i am back in work - some of these men are butchers! [debbie bainbridge, PONTYPOOL] There is definitely a need for more research and better training for GPs, obgyns and consultant gynaes in this area. it took nearly 13 years from my first symptoms before I finaly found out I had a fibroid - I had started to pass clots and had slight back pain to start and my cycle became shorter and periods heavier over this period of time but was told that this was to be expected!I had UAE in October 2007 and although because of the size of my fibroid it took a while for things to get better it is the best thing I have ever done and I am glad i spent the time to search out a good gynae and interventional radiologist - it took about 18 months and vistst o 5 gynaes and 4 hospitals [Sian Morgan, HAVERFORDWEST] I feel strongly about improving research, care and training on fibroid. [olamoji akinmolayan, london] I have just cancelled my hysterectomy that was due to take place next week. My gynaecologist wanted to 'whip' out everything including my ovaries even though I have only just turned 43. I have heard of good results in the US where Mifepriston or RU-486 has been used to treat fibroids. I want to take part in trials of this drug here as it sounds amazing. Is any research going on in the UK on the effectiveness of this drug in treating fibroids? [Barbara Sayers, Borehamwood] Just because it's not cancer doesn't mean it's not worth treating. Surely quality of life needs to move higher up the agenda. [Judi Evans, Bingley] I certainly agree with the view that Fibroids have not received as much attention as it should, considering its prevalence and effects on women. I will be happy to see that more is done towards research and education in the UK. [Uchenna Eke, Chadwell St Mary] I was diagnosed with fibroids over 10 years ago and had they been treated then I would not now be put in a position where I have to consider an hysterectomy at the age of 43! [Razia Nazir, Bradford] Yes indeed more research! on solutions and reduction of risks. [Christine Akar, Worcester] Having recently undergone a myomectomy I know how miserable having a fibroid makes you and affects your day to day life. As much research as possible should bedone in to the cuases of this condition. [Carolyn Dalton, Leeds] Every woman should be fully informed of all options . A young member of our family was fortunate to receive this in London. [Marian Marcham, Leeds] I fully support research into this condition and would like to add my name to the campaign to raise more awareness of the condition which causes much suffering to so many women. [Pamela Welland, Bosham, Chichester, West Sussex] More guidance needs to be given for women who wish to remain fertile and need treatment for their firbriods [Lisa, Carshalton] I have resisted surgery in the hope that an alternative to the current options will come to light. I'm still waiting [Miss Lesley Williams, Islington] Living in the North of England the only option here to be completely free of fibroids is to have a total hysterctomy. I don't think anyone truly understands the misery of fibroids,both physically and mentally, unless they have suffered themselves. I have had some relief in the last 12 months with Zoladex. However, there is only 1 GP in our practice who can administer this, and it is almost impossible to get an appointment with him! There should be more research,training,and treatments available to all women in this country. [Diane Shankland, Wigton] Also need research into how effective current treatment is. From experience everyone is offered a Mirena regardless of whether this is the best option. Side effects are dismissed as trivial and women are supposed to put up with them as long as there is some decrease in bleeding [helen albon, emsworth] Doctors need to be more sympathetic to how it affects womens quality of life, not one person has asked me this question, to which my reply would be i havent got one. more women need to keep going back to gp and complaining. [tracy noon, Portsmouth] My periods are a nightmare as i have 5 fibroids.Im getting womb ablation in 2 weeks, this being an alternative to a hysterectomy.Hope it works. [sheena o'neil, cairneyhill] more reseach also needs to be done on why so many black women have fibriods. [g harris, london] I have just been diagnosed with 3 different types of Fibroids at the age of 40 after years of symptoms which have progressively worsened. I cant accept hysterectomy as the only complete solution when I am yet to have my first child. I dont want to compromise my fertility. More research needs to be made into other options to help sufferers make an educated choice. I live in Dubai where most doctors are British or follow British medical practice. [Margarita Gallego, Dubai] I am astounded that such the NHS is still offering such invasive surgery as the ONLY option to thousands of women. There are alternative treatments out there that should be readily available to every patient. Either some of the medical profession is ignorant to what is available or there simpy isn't enough funding to make alternative treatments available. However wouldn't it far more cost effective if the NHS only had a patient take up a bed for 2 days( with UAE) as a opposed to 2 weeks ( myomectomy)? It doesn't make sense. [claire lim, London] Having had fibroids for at least the past 10 years at the age of 54 they are still growing. I am battling with the medical opinions and this afternoon have an appointment when I will be insisting on a referal to at least talk to a radioligist who performs embolization to then be able to evaluate for myself another option available, apart from hysterectomy which I have been resisting for the past year. Waiting for referals seems such a waste of time. I am now on my third gynaecolgist as they are so narrow minded. [Anne Johnson, Brighton] I have recently recovered from a myomectomy, after years off misery and ill health, which was misdiagnosed as "its your age" (hb of 6 by final diagnose of fibroids).I then had the misfortune of being referred to a consultant who only overs hysterectomies!!! Not accepting this i requested a second opinion and finally found a consultant who was willing to give me a myomectomy to retain by uterus!!! Am now recovering but feel more support and research is needed in this area - I fought for my treatment but how many women actually question the their treatment. Many times I did think how my treatment might have differed if I was paying for my treatment! Fibroids effect millions of women, resulting in time off work, depression and fatigue - most of these women carry on because they are working women, mothers, keeping the family home going and do not have time to moan -they just cope!!! I also ponder on how different it would all be - if men had uterine fibroids!! Sorry to be cynical but 3 years of fighting for my treatment on the nhs (as a very high taxpayer) has taken its toll. My advice would be to "step away from the table and get a second opinion". [liz williams, leicester] Treatment options need to be made available to the patients throughout their treatment - we would not be looking at these websites if we felt we were being given all our options with their side effects discussed honestly throughout. [Grace Gray, Sale] i first had a ovarian cyst in 2005 op and still not pregnant and low and behold i now have Fibroids but i still trying before it's too late. [Kimla (Kim) Johnson, Ashton-under-Lyne] As a long term sufferer of fibroid, I fully support that more effort be put in the research for the fibroid and a permanent cure found. [Milicent Okonta, Gillingham - Kent] My large fibroids are making my life hell and after causing me such intense pain that caused contractions and a late miscarriage, I want to know when I will ever feel normal again. Any research that can support prevention or non-surgical cure I fully support. [Gill Amos, London] Having been diagnosed with fibroids since 2006, I am still trying to decide on my options and believe better guidance and more research should be done [Nisha Kharbanda, Edinburgh] i am in the process of having a myomectiomy open surgery. i am 27 yrs old and previusly had no idea about this condition and all the research i have done and what the doctors told me is that this is an older persons illness. i think youger people need to have ultrasound testing so that they dont have to have such an invasive surgery especially before having children as it can potentially effect you.there is also the possibility of having to have hysterectomy which is very upsetting for a young woman. i found it stressful as i have no children. [maryam hassan, leeds] It is about time the NHS looked into more non-invasive treatments for fibroids.1. It is cost effective, cheaper than hysterectomy. 2. Reduces the misery suffered by thousands of women.My Gp in Kent was fantastic the same cannot be said for my experiences in London when I was a Nurse. [Tracy Jane Wilton, DEAL] Please consider that women need access to early detection and non-invasive treatments when it comes to fibroids. I have been lucky that I have been referred within a month, however many aren't. [Alison Alcroft, Accrington] I believe that gyneacologists must be more forthcoming with their patients regarding all the treatment options for fibroids.Too often surgery is sold as the only option.This needs to change. [Shirlene Hoffman, London] I don't suffer with fibroids, but a good friend of mine does. It's another one of those conditions that we know very little about unless we're suffering from it. More awareness would be good. [Patricia kenny, Mount Vernon, Glasgow]
Signatures Needed	9748
Recent Five Signatories
Lorraine Crawford Alison Alcroft Shirlene Hoffman Patricia kenny Chantal dereepere See All Signatures

This site was last modified on Wednesday 3 February 2010 @ 02:39:57 AM.

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