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Petitioner's Opinions To Support For A Call For Fibroid Research & Education Act.
Signature No. Opinions
115. 
114.  I was diagnosed with fibroids over 10 years ago and had they been treated then I would not now be put in a position where I have to consider an hysterectomy at the age of 43!
113.  I certainly agree with the view that Fibroids have not received as much attention as it should, considering its prevalence and effects on women. I will be happy to see that more is done towards research and education in the UK.
112. 
111. 
110. 
109. 
108. 
107.  Just because it's not cancer doesn't mean it's not worth treating. Surely quality of life needs to move higher up the agenda.
106.  I have just cancelled my hysterectomy that was due to take place next week. My gynaecologist wanted to 'whip' out everything including my ovaries even though I have only just turned 43. I have heard of good results in the US where Mifepriston or RU-486 has been used to treat fibroids. I want to take part in trials of this drug here as it sounds amazing. Is any research going on in the UK on the effectiveness of this drug in treating fibroids?
105. 
104. 
103. 
102. 
101.  I feel strongly about improving research, care and training on fibroid.
100.  There is definitely a need for more research and better training for GPs, obgyns and consultant gynaes in this area. it took nearly 13 years from my first symptoms before I finaly found out I had a fibroid - I had started to pass clots and had slight back pain to start and my cycle became shorter and periods heavier over this period of time but was told that this was to be expected!I had UAE in October 2007 and although because of the size of my fibroid it took a while for things to get better it is the best thing I have ever done and I am glad i spent the time to search out a good gynae and interventional radiologist - it took about 18 months and vistst o 5 gynaes and 4 hospitals
99. 
98.  I saw a professional and all he wanted to do was a hysterectomy - i saw someone else and has a resectin a week ago and feel fab - i am back in work - some of these men are butchers!
97.  Enact legislation to require the medical establishment to disclose all options available to women for treating fibroids. Provide sources for information to patients to learn more about each option including discussion boards on the internet wherein fellow-sufferers discuss their experiences in an open and candid forum.
96. 
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